ADHD and My Child: the battle with healthcare

My youngest son is the equivalent to the Tasmanian Devil at times, and I don’t mean the actual animal that lives in the bush, I mean that little cartoon guy that just spun everywhere and caused destruction in his path. It has been a challenge dealing with his lack of control at times, but there is only so much control he has. At the age of 5 he was diagnosed with ADHD, and it’s severe. As an early childhood educator I knew something was off developmentally a few years earlier but ADHD and ADD are not typically diagnosed until school age. All we knew was that he was struggling, a lot, in preschool due to his inability to keep his hands to himself, his lack of self control, outbursts both positive and negative, and the Tasmanian devil that seems to have inhabited his body.

After conducting research on my end, talking to his teacher and other professionals in the field, we came to the conclusion that he should be evaluated for ADHD. Luckily for us, his pediatrician also turned out to be the leading expert on ADHD in the area. That gave us extra peace of mind as we went through this process. After meeting with the doctor privately and conducting evaluations with our son we decided we would try medication. Deciding to use medication was not a snap decision. We had heard horror stories about children turned into zombies and the last thing we wanted was for him to lose was his spark. When he is not in tailspin mode destroying all in site he is an intelligent, funny and entertaining kid.

He wanted his hair to look like Sonic the Hedgehog this summer!

My son loves Michael Jackson and Bon Jovi. He was so obsessed with the Broadway Musical Newsies that the age of 3 he was the main character, Jack Kelly for Halloween. He’s creative and silly but he also has no impulse control, yells his favorite phrase “Booty-Butt” without warning at the top of his lungs, and used to greet people by hitting them in the crotch. Not forcefully, but enough to hurt, particularly if you were a man. We knew he couldn’t continue on this path and be successful. This wasn’t just your typical case of a child gone wild. I am a career expert in Early Childhood, his father has an undergraduate degree in Psychology. We knew what we should be doing to help him and nothing seemed to work.

The first medication we tried him on cost a whopping $60 a month after insurance. $60 a month for something my child needed to function. We saw results but he was still struggling. Especially as the evening wore on and the medication wore off. He became next to impossible to corral into anything productive. He started therapy with a psychologist and we were hoping to see major results. Unfortunately they seemed slow to come. On the upside he was getting much better reports from school and I was more confident about him starting kindergarten in the fall. At home he still wreaked havoc, knocked things over, ran around and caused general frustration for everyone.

Yes we tried discipline, time outs, meaningful chats, loss of privileges, positive re-direction. If it was in an expert handbook, we tried it. Nothing seemed to work for him. The only plan that has seemed to work is ignoring the negative behavior and over the top praise the positive choices. I have been reading the book Transforming the Difficult Child by Howard Glasser and his advice seems to be the first and only thing outside of medication that has had a positive effect on my son. And I love that feels built up by praise. I want to cheer him on and praise him and give him confidence, but there are only so many times I can hear “Booty-Butt” screamed at the top of his lungs while he claps his hands loudly. These aren’t discipline issue, these are impulse control issues. His brain is simply wired differently.

Amidst Cornoavirus shut-downs, he turned 6. We went in for his physical and I asked if there was something new we could try. After talking to me and performing the evaluation the doctor offered a new option. He said it was taken twice a day, was more potent and should have a more lasting effect. I was ecstatic. I went to get the prescription filled and they wanted $365. I’m sorry, for one month? On insurance?! That was simply not sustainable but my child potentially needed this to thrive. After frantic searching I found a manufacturer’s coupon that cut it down to $185 a month. The upside, it seems to be working wonders for him. I am seeing a more calm and engaged child. I am better able to hold conversations with him, and I see him able to focus for longer periods. In addition, it is not suppressing his appetite the way the first one was. These are all wins. The downside is I have to pay almost $200 a month for a medication, for a mainstream mental health disorder in order to help my child succeed and function they way a typical 6 year old should.

What does this say to you about America’s health care policies? Put simply, they are garbage. My son’s father is a doctor, he works for a major corporation, he should have top notch insurance, yet this is what he is offered. A plan that doesn’t even cover medications aimed at treating a common mental health disorder. It angers me and disgusts me. We are fortunate that while it’s not easy, we can afford to pay this amount each month to help our child, but what about all the people who can’t? Without insurance this same medication was over $600! As a mom and an educator I am calling out the U.S. Healthcare system and pharmaceutical companies. How dare you make billions each year and rake us over the coals for our basic needs. How do you expect America’s children to thrive and meet their potential when many don’t have access to their medication needs? It is an absolute travesty that in what is supposed to be the country of Freedom and Liberty the average American child does not have access nor can afford basic health care costs.

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